Specialty Sisters Talk

Kids, Crafts & Chronic Illness

  Let me tell you...   Let me tell you why crafting with my kids often is so important to me.   Not only does it help teach them to follow directions and learn about new things. It’s helps them express themselves in their own way. Yes, they are only 5 and 3, (almost 😭) but they are their own individuals with their own personalities and should be able to express them.   Now. Let me tell you how this has helped my son with severe hemophilia.   Crafting has become an outlet for Grayson. By crafting I do not...

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Back to School

Be prepared Education School Teacher Tips

Back to School

Summer is ending, and with that school is about to resume (some of you already started back!) Whether you are going back to school virtually, face to face, or a blended model please, keep a few things in mind. If not for your sanity, for your child's. We are doing what we must and what is best for our own families. Not everyone is going to agree, and let's be serious, no one will have a "perfect" solution. Starting back will be a challenge regardless, and let me tell you why.   During summer breaks, there is usually a "loss"...

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Who doesn’t like traveling 🤷‍♀️

Be prepared Medical Alert Traveling

Who doesn’t like traveling 🤷‍♀️

I LOVE to travel. I love taking trips to different places and exploring. Traveling doesn’t always mean going out of town or state on vacation. My husband and I both “travel” to work 35 minutes away from our home. My son’s hematologist is even further than that. Speaking of Grayson... since his diagnosis of severe hemophilia, traveling, and just riding around town with him in the car has added a little anxiety to my trips. I have a nagging fear of getting in an accident with him in the car. This is not something I have shared with anyone (other...

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Q&A

Education Hemophilia

Q&A

My sister and I being very involved in the world of hemophilia, as well as education, we get a lot of questions.  We are here to answer some of the most common questions we are asked.  Feel free to comment below and ask any other questions we have not answered today.   What is hemophilia? Hemophilia B?The short answer…hemophilia is a rare bleeding disorder in which a person's blood does not clot properly. Many different clotting proteins help the blood clot; hemophilia b has a deficiency of clotting factor 9. Is it contagious?No. Hemophilia is not contagious.Is hemophilia genetic?The majority...

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Gardeners in the making

DIY Garden Gardening Healthy eating Organic

Eating healthy can be VERY challenging, especially when you have 2 picky eaters. For our family, eating healthy is important, but eating organic is just as important to us. 🌱To eat organic food can run your grocery bill way up. So... our solution... grow our food! 🌿My husband has a pretty green thumb. I, on the other hand, do not (I’m learning, though). 🌱We got creative and used an old carport as a frame for our garden area. The pictures are below. We did a bunch of research on what we could currently start growing for the season and bought...

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